The following is a listing of links organized by categories to make your search for information easier to navigate. Some links are included in multiple categories.
Accessible Transportation/Travel
- 19 Best Cars That are Easy to Get In and Out of + Their Safety Features
- Air Travel with a Disability
- Event & Entertainment Accessibility Guide for People with Disabilities
- Flying with Disabilities and Special Needs Guide
- Guide to Home & Auto Loans for those with Disabilities
- Handicap Permit Parking Guide for People with Disabilities
- How to Make Flying with Disabilities Less Stressful
- Moving With Children With Disabilities: Tips and Advice for Easing Transitions
- NJ Access Link – ADA Paratransit
- NJ LogistiCare Medical Transportation
- NJ Transit Accessible Services
- Purchasing an Accessible Van
- Travel with a Disability
- Traveling during the COVID-19 Pandemic with Disabilities
- Traveling with a Disability Guide
- Vehicle Modifications & Car Insurance for People with Disabilities
Adaptive Sports/Fitness & Recreation
- A Guide to Healthy Living for People with Disabilities: Exercise
- Access Pass – National Parks
- American Dance Wheels
- Carousel House Recreation Center, Philadelphia, PA
- Empowered by Disability Sport: An Athlete's Story
- Move United: Let's #AdaptAtHome Together
- The Best Chair Exercise Videos
- The Challenged Athletes Foundation
Addictions and Disabilities
- Addiction Treatment and Recovery Guide for Disabled People
- Am I An Alcoholic?
- Drug and Alcohol Rehab for the Disabled
- Drug Rehab Connections
- Evaluating an Individual’s Treatment Needs: Substance Abuse Among Physically Disabled Individuals
- Find Freedom from Alcohol Addiction
- Help with Alcoholism: Articles, Help & Advice
- How Long Does It Take to Sober Up?
- Resources from the Addiction Group
- The Relationship Between Disability and Addiction
Arnold Chiari Malformation
Assistive Technology & Equipment
- A Father’s Invention and Physical Therapy Offer Mobility, Hope for Kids With Spinal Cord Injuries
- A Guide to Medical Alert Systems
- AbleLink Technologies
- ADA Requirements for Power-Driven Mobility Devices
- Assistive Technology Buying Guide
- Assistive Technology for Learning Disabilities
- Assistive Technology Programs for each State
- Gear Guide: Power Assist Devices
- Learning Accommodations for Online Students
Babies – Prenatal through Infancy
- A Father’s Invention and Physical Therapy Offer Mobility, Hope for Kids With Spinal Cord Injuries
- About Fetal Surgery for Spina Bifida
- Building Confidence and Parenting Skills When Your Baby Is in the NICU
- Expectant Parent’s Guide
- Living with Spina Bifida: Infants
- New Jersey Early Intervention System
- NICU Experience: For Parents of Babies with Spina Bifida
- NICU Experience: Questions From Parents Of Babies With Spina Bifida
- Prenatal Care for Myelomeningocele (Spina Bifida)
- Research: Benefits of Fetal Surgery
- Spina Bifida – March of Dimes
- The Enabled Mom: Handy Guide to Spina Bifida
Bowel Management
Caregiver Support
- 180 Medical Ron Howell Caregiver College Scholarship
- Aging and Disability Resource Connection
- Caregiver Self-Assessment
- Caregiver Support
- Disability & Health Information for Family Caregivers
- Everything to Know for Family Caregivers
- Family Caregiving Help Guide
- Guidebook for Caregivers of Children with Rare and/or Serious Illnesses
- Support for Family Caregivers
College/Post-Secondary Resources
- 180 Medical College Scholarship Program
- 180 Medical Ron Howell Caregiver College Scholarship
- A Guide to Accredited Online Colleges
- A Guide to Online Associate Degrees
- A Guide to Online Bachelor's Degrees
- A Guide to Online Doctorate Degrees
- A Guide to Online Master's Degrees
- College for Students with Disabilities: A Guide
- College Resources for Students with Disabilities
- Distance Learning for Students with Disabilities
- Graduate School Resources for Students With Disabilities
- Guide on How to Get Scholarships and Grants for Students with Disabilities
- Guide to College Resources for Students with Disabilities
- Guide to Online Social Work Degrees
- Guide to Trade Careers for Students with Disabilities
- Info on Accredited Schools Online
- Learning Accommodations for Online Students
- Navigating and Transitioning to College with Paralysis
- NJ Adult Basic Education/GED Programs
- Resources for Students with Disabilities
- Scholarships and Financial Aid for Students with Disabilities
- Scholarships for Students with Disabilities
- Students with Disabilities: Your Guide to Landing a Job
- Top 61 Scholarships for Disabled Students Feb 2023
- Trade School Guide for Students with Disabilities
Complementary/Alternative Medicine
Coping for Kids
- 5 Steps to Fighting Stress
- About Self-Esteem
- About Wheelchairs
- Dealing with Anger
- Feelings and How to Deal with Them
- Going to a Therapist
- How to Teach Children about Disabilities and Inclusion
- How to Use 911
- If You Don’t Like School
- Learning Problems
- Nervous About Tests
- Organize, Focus, Get it Done
- People, Places & Things that Help
- Why Am I So Sad?
Early Childhood
- A Father’s Invention and Physical Therapy Offer Mobility, Hope for Kids With Spinal Cord Injuries
- Caring for a Child with Spina Bifida
- Helping Children with Special Needs Transition to Kindergarten
- How to Teach Children to Include Classmates with Disabilities
- IDEA – Individuals with Disabilities Education Act
- Living with Spina Bifida: Toddlers and Preschoolers
- New Jersey Early Intervention System
- Reading Comprehension and Spina Bifida
- SB & 504 Plan
- SB & Education Programs
- SB & Learning
- The Enabled Mom: Handy Guide to Spina Bifida
- The Top 3 Challenges to Finding a Babysitter for Your Special Needs Child
Education Law/Advocacy
Emergency Preparedness
- A Guide to Medical Alert Systems
- Disaster Safety for People with Disabilities: What to Do When Emergency Weather Strikes
- Emergency Power Planning for People Who Use Electricity and Battery-Dependent Assistive Technology
- How to Use 911
- Interactive Disaster Map
- Medical Alert IDs and Hydrocephalus
- MedicAlert Services
- Preparing Your Home for Extreme Weather: A Guide for People With Disabilities
- Ready.gov: People with Disabilities
Employment Resources
- ADA Technical Assistance Hotline
- Applying for a Job with a Disability or Impairment
- Business Ideas for People with Disabilities
- Business Programs and Resources for Entrepreneurs or Graduates with a Disability
- Guide for Job Seekers and Workers with a Disability
- Guide to Independent Work for People with Disabilities
- Job Accommodation Network
- Mental Health Disability Rights in The Workplace: A Guide For Employees
- NJ Work Incentives Network Support (NJ WINS)
- NJ WorkAbility
- Resources for Business Owners with Disabilities
- Resume and Employment Guide for People with Disabilties
- Students with Disabilities: Your Guide to Landing a Job
- Ticket to Work – SSA
- Want to Work From Home? Here's How to Find Jobs for Disabled People at Home in 2020
- What Business Resources are Available for People with Disabilities?
Financial Assistance
- Benefits.gov – Find Disability Assistance Online
- Health Benefits for Children of Veterans with Spina Bifida
- NJ Catastrophic Illness in Children Relief Fund
- NJ Free or Low Cost Community Health Care Clinics
- Personal Finance Guide for People with Disabilities
- United Healthcare Children's Foundation
- Veterans Spina Bifida Program Guide
Health Care Advocacy
Health Insurance/Disability Income
- Continuing Disability Reviews for SSI or SSDI
- Disability Benefits for Spina Bifida
- Health Benefits for Children of Veterans with Spina Bifida
- Low or No Cost Insurance Plans – NJ
- Medicaid Eligibility and NJ DDD
- Medicaid Long Term Care Guide
- Medicaid: What Is It and Why Does It Matter to People with Disabilities?
- Medicare Eligibility for People with Disabilities
- Medicare Official U.S. Government Site
- Medicare/Medicaid
- New Jersey FamilyCare / Medicaid Long Term Care Programs, Benefits & Eligibility Requirements
- NJ FamilyCare
- NJ Free or Low Cost Community Health Care Clinics
- NJ Insurance Help Line
- NJ Medicaid Program Eligibility
- Social Security Administration
- Social Security Disability Benefits Guide
- Veterans Spina Bifida Program Guide
Home Modifications & Accessibility
- Accessible Backyards
- All About Accessibility Remodeling and Retrofits
- Budget-Friendly Smart Home Accommodations
- Creating a Home Where Your Disabled Child Can Thrive
- Creating a Wheelchair-Friendly Home
- Disability Accommodation Guide
- Funding Sources for Home Accessibility
- Guide to Smart Home Tech
- Home Modification Resource Guide
- Home Modifications
- Home Modifications for Young Adults with Special Needs
- Home Remodeling and Modifications for People with Special Needs
- Home Safety for People with Disabilities
- Housing Resources for People with Disabilities
- How Disability-Friendly is Your City?
- How to Create a More Accessible Garden
- How to Make a Bedroom Accessible
- How to Remodel for People with Disabilities
- How to Set Up a Disability-friendly Home Office
- Lifts and Other Home Adjustments
- Making Home Accessible: Home Modification for Disability
- Outfitting Your House for a Child with a Disability
- Should They Stay or Should They Go: Selling a Home with Modifications
- Transition to Adulthood: Top Home Modifications for Young Adults with Special Needs
- Ultimate Guide to Home Remodeling for People with Disabilities
- Where Can I Get Help Paying for Home Repairs or Modifications to Make My Home Accessible?
Housing
- Assisted Living Options for Wheelchair Users
- Benefits.gov – Find Disability Assistance Online
- Disability Accommodation Request Letter
- Emotional Support Animal Laws for Rentals: What You Need to Know
- Finding Apartments for Disabled Apartment Hunters
- Guide to Home & Auto Loans for those with Disabilities
- Housing Resources for People with Disabilities
- Mortgage & Refinance Guide for People with Disabilities
- Moving Tips for Seniors and People with Disabilities
- NJ DDD – Guide on How to Find Housing
- NJ DDD – Housing Assistance FAQs
- NJ DDD – Housing Assistance Policy
- NJ Housing Resource Center
- Rental Housing Rights for Disabled Tenants
- Renter's Rights and Housing Assistance for People with Disabilities
- Should They Stay or Should They Go: Selling a Home with Modifications
- The Ultimate Guide to Finding & Renting Housing with Disabilities
Hydrocephalus
International Federation for Spina Bifida & Hydrocephalus
Las Historias Interiores
Latex Allergy
Learning Issues
- All Kinds of Minds
- Assistive Technology for Learning Disabilities
- Helping Children with Special Needs Transition to Kindergarten
- How to Organize Your Child's IEP Binder
- Lazy Kid or Executive Dysfunction?
- Learning Among Children with Spina Bifida
- Managing Learning Disabilities as a Teen and Young Adult
- Managing Your Child's Documents Under the IDEA
- National Center for Learning Disabilities
- Reading Comprehension and Spina Bifida
- SB & Education Programs
- SB & Learning
- Support for College Students with Learning Disabilities
Legal Advocacy
- ADA Requirements for Power-Driven Mobility Devices
- ADA Technical Assistance Hotline
- Disability Rights NJ
- Mental Health Disability Rights in The Workplace: A Guide For Employees
- NJ Community Health Law Project
- NJ Division on Civil Rights
- Renter's Rights and Housing Assistance for People with Disabilities
Let’s Talk About
Medical Web Resources & Databases
Medications/Prescriptions
Mental Health
Newsletters
NJ State Departments & Agencies
- Accessing Developmental Disability Services in New Jersey – A Resource Guide
- New Jersey FamilyCare / Medicaid Long Term Care Programs, Benefits & Eligibility Requirements
- NJ Catastrophic Illness in Children Relief Fund
- NJ DDD Home & Community Based Services
- NJ DDD Self Directed Services
- NJ Department of Health
- NJ Division of Children and Families – Children's System of Care
- NJ Division of Developmental Disabilities
- NJ Division of Disability Services
- NJ Long Term Care (MLTSS)
- NJ Special Child Health & Early Intervention Services
- NJ Supports Program & Community Care Program: A Quick Guide for Families
- Selecting and Evaluating a Support Coordination Agency
- The Boggs Center on Developmental Disabilities
Nutrition/Weight Concerns
- A Guide to Healthy Living for People with Disabilities
- Body Fat Calculator
- Exercise for Individuals with Spina Bifida
- Exercising & Stretching with SB – YouTube
- Improve Your Health From Your Kitchen
- Nutritional Considerations for Adults with Spina Bifida
- Obesity among Persons with Spina Bifida
- SB & Nutrition
- What color is your food?
Online Support Groups/Courses
Oral Health
Orthopedics
Pain
Parents with Disabilities
Planning for the Future
- A Guide to Ease the Transition to Assisted Living
- A Guide to Staying Safely at Home – Aging in Place
- ABLE Accounts
- Aging & Disability Resource Connection
- Assisted Living Options for Wheelchair Users
- Estate and Financial Planning Guide for Families of Children With Special Needs
- How to Become a Legal Guardian (NJ DDD)
- How to Start a Special Needs Trust to Save for your Child's Future
- Moving Tips for Seniors and People with Disabilities
- Planned Lifetime Assistance Network of NJ
- Planning for the Future for Seniors with Special Needs
- Two Different Types of Special Needs Trusts
- Ways to Provide For Your Disabled Adult Child's Future
- What Is a Special Needs Trust?
Prevention: Folic Acid
Research
Resources
- Accessing Developmental Disability Services in New Jersey – A Resource Guide
- Christopher & Dana Reeve Foundation
- Discounts for People with Disabilities
- Guide on How to Get Scholarships and Grants for Students with Disabilities
- NJ DHS Resource Guide 2023
- NJ DHS Resource Guide 2023 Spanish
- Personal Finance Guide for People with Disabilities
- Persons With Disabilities Discounts Guide
- Resources for Individuals and Families With Disabilities or Special Needs
- Retail Savings Guide for People with Disabilities
Safety Issues for People with Disabilities
- 8 Ways to Keep a Loved One with a Disability Safe
- A Guide to Medical Alert Systems
- CDC: Health & Safety
- Home Safety for People with Disabilities
- Keeping Children with Disabilities Safe
- Lifts and Other Home Adjustments
- Online Safety Guide for People with Disabilities
- Preventing Aspiration
- Preventing Choking
- Preventing Constipation
- Preventing Dehydration
- Preventing Pressure Ulcers
- Safety Issues for People with Disabilities
- Walk-In Bathtubs
School Age
- Accommodations & Modifications: How They Affect Instruction
- Helping Children with Special Needs Transition to Kindergarten
- How Teachers Can Make Their Classrooms More Accessible
- How to Organize Your Child's IEP Binder
- How to Teach Children about Disabilities and Inclusion
- How to Teach Children to Include Classmates with Disabilities
- IDEA – Individuals with Disabilities Education Act
- NJ County Offices of Education
- NJ Department of Education
- NJ Office of Special Education
- SB & 504 Plan
- SB & Education Programs
- SB & Learning
- The Enabled Mom: Handy Guide to Spina Bifida
Secondary Conditions
- Depression & Anxiety
- Hydrocephalus & Shunts
- Hydrocephalus Fact Sheet
- Obesity among Persons with Spina Bifida
- Overview of Hip Function & Ambulation
- Overview of Precocious Puberty
- Overview of Symptomatic Chiari Malformation
- Pressure Ulcers & Skin Care
- SB & Chiari Malformation
- Spina Bifida and Pain
- Surgical and Reconstructive Treatment of Pressure Injuries
Self-Advocacy
- 10 Self-Advocacy Tips for Young People with Disabilities
- 10 Ways to Make Society More Inclusive for People with Disabilities
- A Guide to Home and Community Based Services Advocacy
- Best Practices in Self-Advocacy Skill Building
- Inclusive Language for Disability: How and Why
- It's My Choice Personal Future Planning Manual
- Living through the Sting of Disability
- Self-Advocacy: Empowering Individuals with Disabilities
- Speak Up: Your Guide to Self-Advocacy
Service Animals
Sexuality
- Men’s Health: Urologic and Sexual Function
- Overview of Precocious Puberty
- Sexuality in Men with Spina Bifida
- Spina Bifida and Sex
- Spina Bifida: Sexuality Education
- Top dating, relationship and sex tips for wheelchair users
- Women’s Health: What women with SB need to know about sexuality, fertility and preventive care
Sibling Support
Skin Care
Spina Bifida Centers/Clinics
Spina Bifida Overview
Summer Camp
Support Organizations
- ABCD of New Jersey
- National Center for Learning Disabilities
- NJ Council on Developmental Disabilities
- NJ Division of Developmental Disabilities
- NJ Division of Disability Services
- SBRN's Golden Girls Telegroup
- Statewide Parent Advocacy Network (SPAN)
- The ARC of New Jersey
- The Elizabeth M. Boggs Center
- US Department of Health and Human Services
Tethered Spinal Cord
Transition to Adult Life
Transitioning to a Wheelchair
Urology/Continence Issues
- Bowel Management for SB by & for Parents and Adults with SB
- Continence Management In Schools
- SB & Bowel Management
- SB & Self-Catheterization
- SB & Urologic Management
- Spina Bifida and Incontinence
- Transitioning Urologic Care
- Urinary Tract Infections in Young Children with Spina Bifida
- Urologic Care and Management